Home again

Quinn did astonishingly well on the plane trip home. That was the part of this whole ordeal I was most dreading, and it really was no big deal.

To be honest, I think codeine may have been a factor. At my mom's wise suggestion, we gave him a dose of his pain meds shortly before each flight. The first takeoff was really tough - he could not get comfortable in the seat and was squirming, pulling off his seat belt and crying pretty hard. After takeoff I managed to get him to lay down with his feet in my lap and he went almost immediately to sleep. Miraculously, he stayed that way for the entire four-hour flight. I even got to read a book and drink a hot tea.

In Dallas he had a nice dinner of his beloved vegetable lo mein, and on the flight home he laid with his head in my lap and watched Baby Beethoven (known to Quinn as "teh bear vi" after the violin-playing teddy bear that makes a couple of appearances near the beginning of the video.

He's pooped and we're pooped, but we're all glad to be home.

Choo-choo!

Quinn is a train fanatic, and loves nothing more than going to the small train station near the hospital and watching the choo-choo's come and go.

Today we went for an actual ride on a train, to Faneuil Hall. He LOVED it.

Already walking!

Amazingly, Quinn is walking on his own. None of us can figure out how he's doing it, but he's doing it. He gets tired really fast, not surprisingly, and wants to be carried, which is a mighty challenge.


He falls quite a bit, which is scary - tonight in the room he went straight backwards and bonked his head on the floor. Ouch. It's also very difficult for him to sit up straight because his cast goes down to his hips. That makes high chairs, booster seats, regular chairs and sofas all very tricky.

We're a bit nervous about the plane ride home tomorrow. But if the past few days are any indication, he'll find a way to get through it.

Share my pain

This is the Wiggles song and video Quinn requested at least 100 times, all night long, in the hospital. Every time they woke him up for some procedure or another, he'd point at the TV and ask, "More more quack quack?"

I was horrified the next morning to learn Quinn's roommate Zack and his dad heard it every single time - I thought hospital speakers could only be heard from one bed at a time. I guess not...

I challenge you: Watch it and see if you can get it out of your head!

http://www.youtube.com/watch?v=U4dmelafrvk

Out of the hospital

Quinn has been discharged and we're back at the Yawkey Family House. We were told he'd be weepy and cranky for 2-3 days, and then realize the cast isn't going away and start to adapt to it. Instead, he started trying to walk while still in the hospital, which is extremely difficult because the cast is very heavy - I'd estimate about 10 pounds - and holds his right arm straight up and straight out. He's both top heavy and side heavy.

In the hospital he had a really tough time putting one foot in front of the other and couldn't hold up his upper body at all. Back here, though, he is doing much better. He immediately wanted to go to the awesome play room ("Play toys? Play toys?"). And there he moved from his stroller to a chair, with assistance. After a while he wanted an "eh-bayter" ride so Tom helped him down the hall by duck-waddling behind him with his arms around Quinn's waist and cast. By the time they emerged Quinn was walking with Tom holding his hand. He's not walking unassisted yet, but I don't think it will be long. He can even sit in a restaurant high chair and eat with us, which is terrific.

We had been told to bring button-down shirts two sizes two big to fit over the cast, but they're WAY too small. Turns out that when Dr. Waters got a view of Quinn in action pre-surgery, he decided a little redesign was in order. He built a double-thick cast and attached not one but two bars to hold Quinn's arm up in the right-turn position. The thing is HUGE. Quinn wears a 3T and we brought size 5s. Nana and I went to The Gap today and picked up four size 8s at a great price - buy one, get the second for $5. So Q now has a styling summer wardrobe.

I wonder how much of Quinn's amazing adaptability is due to his personality and how much is due to his special need and his time in the orphanage. In China, he learned to make due with what he was given. and because of his bracial plexus injury, sustained at birth, he invented ways to compensate for an only partially useful right arm. I know all kids are highly adaptable, but this kid is pretty remarkable. I am in awe of him.

Bad night, better day (updated with photos)

Quinn had a tough night. He repeatedly stopped breathing when he cried ("I will hold my breath until this cast is OFF!") and then the heart monitor indicated an irregularity. That meant an EKG - challenging with only a small chest hole for monitoring stickers. Then blood work - even more challenging because of his very deep veins. It took two teams of nurses and two needle sticks to get it right. So neither of us got much sleep.

The only thing that kept Quinn calm was back to back to back playing of the very annoying, "Quack, quack, quack, quack, quack, cock-a-doodle-doo" by The Wiggles. Quinn found it at the beginning of a fairly ancient Barney VHS tape from the hospital library and it was love at first listen. So listen we did, and did, and did, and did.

Today things are a little better. A cardiologist said Quinn likely has a very common early heartbeat in the upper chamber that 9 out of 10 kids grow out of. He's being fitted with a monitor today and will wear it for the next 24 hours. We also had visits from a car seat specialist, and a physical therapist who helped us figure out how to lift Quinn and get him in and out of his stroller. A cast tech cut some off the bottom of his cast because he couldn't sit up straight, and cut some out of the arm pit because it was sticking into him. And that was all before lunch!



We went down to the cafeteria for lunch and Quinn watched the giant ball maze for a long time, and the fish tank for a long time, both of which he loves.


After lunch he played in the activity room with BaBa and NaNa while I filled prescriptions, got travel letters, got release instructions and filled out release paperwork.

He's back to saying he wants to go on a train ride and directing which Barney songs he wants to hear, so he's definitely getting back to normal.

Out of surgery and mad as hell (updated with photos)

Quinn's surgery wasn't until 2:45 p.m., which really worried us because this kid does not like to skip meals. Our strategy was to keep him busy, busy, busy and filled up with apple juice, which was allowed until two hours before surgery.


At 12:30, a bit nervous, we left the Yawkey Family House Here it is - a former frat house that was completely renovated and reopened about 9 months ago in its current form.)



At the hospital, he walked happily into the OR. He had a great time operating the mechanical bed with directions from the awesomely cool anesthesiologist, and played a fun game blowing into a mask, which he didn't realize was the fumes that would knock him out. The nurses were very patient and took their time with him, but when he tried to convince them to put the mask on his toe ("On toe! On toe!"), the anesthesiologist popped the mask on his mouth and off to dreamland he went.

While he was in surgery, we waited in this very nice family area. The surgery lasted 1 hour and 15 minutes, followed by an hour to put on the cast and an hour in the recovery room before we were ushered in. The poor kid woke up immobile, with his arm in a horribly awkward position.



Understandably, he is MAD! Between tears and begging to put his arm down, he did ask for some apple juice (his new passion, discovered this morning when he was on a clear-liquids diet until our noon arrival at the hospital).



He is doing well, all things considered. A nurse was able to scare up a master key to the locked video room, so Barney is making things better, as Barney always does for Quinn. After two doses of morphine, he is finally sleeping and I'm in the fold-out bed beside him.

Dr. Waters said kids who wake up with a "spike" cast are typically mad, mad, mad for a day or two and then adjust quite well once they realize it's not going away. Let's hope that's the case for Quinn!